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	<title>Comments on: Getting down to the thorny issues: where should new cash for care be prioritised?</title>
	<atom:link href="http://www.caringchoices.org.uk/index.php/getting-down-to-the-thorny-issues-where-should-new-cash-for-care-be-prioritised/feed" rel="self" type="application/rss+xml" />
	<link>http://www.caringchoices.org.uk/index.php/getting-down-to-the-thorny-issues-where-should-new-cash-for-care-be-prioritised</link>
	<description>Caring Choices is a nationwide initiative to help shape future policy on long-term care for older people.</description>
	<lastBuildDate>Mon, 28 Apr 2008 17:38:53 +0100</lastBuildDate>
	
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		<title>By: isla clough( retired nurse)</title>
		<link>http://www.caringchoices.org.uk/index.php/getting-down-to-the-thorny-issues-where-should-new-cash-for-care-be-prioritised/comment-page-1#comment-495</link>
		<dc:creator>isla clough( retired nurse)</dc:creator>
		<pubDate>Sat, 09 Feb 2008 14:44:29 +0000</pubDate>
		<guid isPermaLink="false">http://www.caringchoices.org.uk/?p=66#comment-495</guid>
		<description>My mother has moved from a Care Home to Nursing Home. She has visual problems,deafness, bowel problems,new hip replacement Jan:2008.The Care Home refused to have her back after the fractured hip was replaced. Her nursing care costs up £42,000.00 a year. £5000.00 may be paid by the PCT.
Cost of nursing which is health care should not be paid by anyone.Hotel costs ,accomodation,food heating ect is not that unreasonable but health care obscene. The NHS is from cradle to grave and is not free. We all pay for it.My mother has paid from 1948.</description>
		<content:encoded><![CDATA[<p>My mother has moved from a Care Home to Nursing Home. She has visual problems,deafness, bowel problems,new hip replacement Jan:2008.The Care Home refused to have her back after the fractured hip was replaced. Her nursing care costs up £42,000.00 a year. £5000.00 may be paid by the PCT.<br />
Cost of nursing which is health care should not be paid by anyone.Hotel costs ,accomodation,food heating ect is not that unreasonable but health care obscene. The NHS is from cradle to grave and is not free. We all pay for it.My mother has paid from 1948.</p>
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		<title>By: MIchelle Dixon</title>
		<link>http://www.caringchoices.org.uk/index.php/getting-down-to-the-thorny-issues-where-should-new-cash-for-care-be-prioritised/comment-page-1#comment-257</link>
		<dc:creator>MIchelle Dixon</dc:creator>
		<pubDate>Mon, 08 Oct 2007 21:26:16 +0000</pubDate>
		<guid isPermaLink="false">http://www.caringchoices.org.uk/?p=66#comment-257</guid>
		<description>Caring Choices doesn&#039;t claim to represent the views of any particular group; rather we are a partnership of organisations who, between us, represent all the different aspects of the long term care system. The one goal that unites us is that we want to gather the views of as many people as possible with experience of long term care on options for the future. We completely understand the difficulties for many carers - and indeed many service users - in attending consultation events. Some of our partner organisations have been able to help individuals attend events through appropriate practical and financial  support, though this is limited by our own budgets. In this way, we have been able to keep the balance of older people and carers roughly equal to service commissioners and providers attending our consultation events. And we are also working hard to encourage individuals to contribute views online - via the questionnaire and this comment facility. In addition, we are sending out hard copy questionnaires - for example, to a number of care homes. The final Caring Choices report will take account of all these comments and views and, we believe, will have a significant impact on policy makers nationally and locally.</description>
		<content:encoded><![CDATA[<p>Caring Choices doesn&#8217;t claim to represent the views of any particular group; rather we are a partnership of organisations who, between us, represent all the different aspects of the long term care system. The one goal that unites us is that we want to gather the views of as many people as possible with experience of long term care on options for the future. We completely understand the difficulties for many carers &#8211; and indeed many service users &#8211; in attending consultation events. Some of our partner organisations have been able to help individuals attend events through appropriate practical and financial  support, though this is limited by our own budgets. In this way, we have been able to keep the balance of older people and carers roughly equal to service commissioners and providers attending our consultation events. And we are also working hard to encourage individuals to contribute views online &#8211; via the questionnaire and this comment facility. In addition, we are sending out hard copy questionnaires &#8211; for example, to a number of care homes. The final Caring Choices report will take account of all these comments and views and, we believe, will have a significant impact on policy makers nationally and locally.</p>
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		<title>By: Cathy</title>
		<link>http://www.caringchoices.org.uk/index.php/getting-down-to-the-thorny-issues-where-should-new-cash-for-care-be-prioritised/comment-page-1#comment-240</link>
		<dc:creator>Cathy</dc:creator>
		<pubDate>Sun, 07 Oct 2007 17:51:08 +0000</pubDate>
		<guid isPermaLink="false">http://www.caringchoices.org.uk/?p=66#comment-240</guid>
		<description>Last week I should have taken part in a carers&#039; consultation run by the DoH. I was unable to attend because Social Services refused to supply a day&#039;s respite cover for my mother. Therefore my voice as a lone carer was lost to an official consultation. 

For the same reasons, I am not able to attend any &#039;Caring Choices&#039; debates, and my previous message on this board has not drawn a single reply from &#039;Caring Choices&#039;. 

When it comes to the partners listed in &#039;Caring Choices&#039;, I am starky aware that two of them are reseach organisations, five are charities(excluding Carers UK who should be &#039;the Voice&#039; fighting for carers but who seem to be hedging their political bets), and seven have a financial profit-making/money-saving interest in keeping the cost of care within the family!!! 

Is it any wonder that carers are cynical about the government&#039;s intentions and their methods of collecting information?</description>
		<content:encoded><![CDATA[<p>Last week I should have taken part in a carers&#8217; consultation run by the DoH. I was unable to attend because Social Services refused to supply a day&#8217;s respite cover for my mother. Therefore my voice as a lone carer was lost to an official consultation. </p>
<p>For the same reasons, I am not able to attend any &#8216;Caring Choices&#8217; debates, and my previous message on this board has not drawn a single reply from &#8216;Caring Choices&#8217;. </p>
<p>When it comes to the partners listed in &#8216;Caring Choices&#8217;, I am starky aware that two of them are reseach organisations, five are charities(excluding Carers UK who should be &#8216;the Voice&#8217; fighting for carers but who seem to be hedging their political bets), and seven have a financial profit-making/money-saving interest in keeping the cost of care within the family!!! </p>
<p>Is it any wonder that carers are cynical about the government&#8217;s intentions and their methods of collecting information?</p>
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		<title>By: Ian</title>
		<link>http://www.caringchoices.org.uk/index.php/getting-down-to-the-thorny-issues-where-should-new-cash-for-care-be-prioritised/comment-page-1#comment-239</link>
		<dc:creator>Ian</dc:creator>
		<pubDate>Sun, 07 Oct 2007 12:09:49 +0000</pubDate>
		<guid isPermaLink="false">http://www.caringchoices.org.uk/?p=66#comment-239</guid>
		<description>When &quot;official&quot; bodies (aka do-gooders) talk about &quot;informal carers&quot; it belittles the considerable, prolonged and meticulous efforts of us Official, Full Time Experienced Carers.

The fact that none of these &#039;gooders will speak up on our behalf for proper pay and conditions (parity with Foster Carers) proves that they are merely leeches, seeking to further line various already well lined back pockets.

This is a huge multi-million pound business now, with many private limited companies, local authorities and PCTs competing for a slice of the (very considerable billions) cake.

Most are just sucking money out of this budget that is supposed to come direct to Carers.  An example is our LA who had £1m allocated for Carers benefit, but they took over £300k n admin costs and commandeered the rest for Care for the Elderly whose budget was over subscribed.

The money should be paid directly to Carers, cutting out all these &quot;middle men&quot; and &#039;gooders.

We do not need these legions of self styled &quot;experts&quot; and committees and advisory panels and charities all with plush offices in London&#039;s expensive docklands.

Its my estimate that the £200bn saved by paying Carers directly would more than pay the £140bn yearly bill, thus saving the government £60bn per year.

Of course nobody within these ivory towers would dare to suggest such a thing, it would kill the goose that lays the golden egg, wouldn&#039;t it?

So go away and count your money, because the days of these type of organisation are numbered, we have one of the most ruthless and vociferous PMs and ex chancellors this country has ever know, its not for a joke he&#039;s known as &quot;Iron man&quot; with an iron fist....he&#039;s coming to audit some books near you soon...

ian</description>
		<content:encoded><![CDATA[<p>When &#8220;official&#8221; bodies (aka do-gooders) talk about &#8220;informal carers&#8221; it belittles the considerable, prolonged and meticulous efforts of us Official, Full Time Experienced Carers.</p>
<p>The fact that none of these &#8216;gooders will speak up on our behalf for proper pay and conditions (parity with Foster Carers) proves that they are merely leeches, seeking to further line various already well lined back pockets.</p>
<p>This is a huge multi-million pound business now, with many private limited companies, local authorities and PCTs competing for a slice of the (very considerable billions) cake.</p>
<p>Most are just sucking money out of this budget that is supposed to come direct to Carers.  An example is our LA who had £1m allocated for Carers benefit, but they took over £300k n admin costs and commandeered the rest for Care for the Elderly whose budget was over subscribed.</p>
<p>The money should be paid directly to Carers, cutting out all these &#8220;middle men&#8221; and &#8216;gooders.</p>
<p>We do not need these legions of self styled &#8220;experts&#8221; and committees and advisory panels and charities all with plush offices in London&#8217;s expensive docklands.</p>
<p>Its my estimate that the £200bn saved by paying Carers directly would more than pay the £140bn yearly bill, thus saving the government £60bn per year.</p>
<p>Of course nobody within these ivory towers would dare to suggest such a thing, it would kill the goose that lays the golden egg, wouldn&#8217;t it?</p>
<p>So go away and count your money, because the days of these type of organisation are numbered, we have one of the most ruthless and vociferous PMs and ex chancellors this country has ever know, its not for a joke he&#8217;s known as &#8220;Iron man&#8221; with an iron fist&#8230;.he&#8217;s coming to audit some books near you soon&#8230;</p>
<p>ian</p>
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		<title>By: Caring Choices team</title>
		<link>http://www.caringchoices.org.uk/index.php/getting-down-to-the-thorny-issues-where-should-new-cash-for-care-be-prioritised/comment-page-1#comment-227</link>
		<dc:creator>Caring Choices team</dc:creator>
		<pubDate>Wed, 03 Oct 2007 15:03:12 +0000</pubDate>
		<guid isPermaLink="false">http://www.caringchoices.org.uk/?p=66#comment-227</guid>
		<description>Caring Choices does not exclude carers in any way. Carers are involved in the Caring Choices debate by taking part in our regional events (reports of which are available on this site in the &#039;About Caring Choices&#039; section) and by contributing their comments on this website. A full report next year will take carers’ contributions into account.</description>
		<content:encoded><![CDATA[<p>Caring Choices does not exclude carers in any way. Carers are involved in the Caring Choices debate by taking part in our regional events (reports of which are available on this site in the &#8216;About Caring Choices&#8217; section) and by contributing their comments on this website. A full report next year will take carers’ contributions into account.</p>
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		<title>By: Clive Arnold</title>
		<link>http://www.caringchoices.org.uk/index.php/getting-down-to-the-thorny-issues-where-should-new-cash-for-care-be-prioritised/comment-page-1#comment-225</link>
		<dc:creator>Clive Arnold</dc:creator>
		<pubDate>Wed, 03 Oct 2007 12:32:06 +0000</pubDate>
		<guid isPermaLink="false">http://www.caringchoices.org.uk/?p=66#comment-225</guid>
		<description>I want to know WHY Carers aren&#039;t involved in Caring Choices, the Standing Commission, DSC forum or ANY consultation body.

What gives Caring Choices and the other places mentioned the right to exclude Carers from taking part?</description>
		<content:encoded><![CDATA[<p>I want to know WHY Carers aren&#8217;t involved in Caring Choices, the Standing Commission, DSC forum or ANY consultation body.</p>
<p>What gives Caring Choices and the other places mentioned the right to exclude Carers from taking part?</p>
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		<title>By: Cathy</title>
		<link>http://www.caringchoices.org.uk/index.php/getting-down-to-the-thorny-issues-where-should-new-cash-for-care-be-prioritised/comment-page-1#comment-222</link>
		<dc:creator>Cathy</dc:creator>
		<pubDate>Wed, 26 Sep 2007 22:33:07 +0000</pubDate>
		<guid isPermaLink="false">http://www.caringchoices.org.uk/?p=66#comment-222</guid>
		<description>What I want to know is - why did Gordon Brown as Chancellor, and Tony Blair as Prime Minister, ignore the findings and recommendations of the Royal Commission Report, ‘With Respect to Old Age’, produced in 1999? (The Sutherland Report)?

Following extensive consultation, research and costing, this comprehensive Report looked at various options for funding and finally recommended:

‘The costs of long-term care should be split between living costs, housing costs and personal care. Personal care should be available, after assessment, according to need and paid for from general taxation: the rest should be subject to co-payment according to means.’ 

The recommendations were implemented in Scotland where care is, in effect, subsidised by tax payers in the south of England. 

After the Government’s failure to act, the Royal Commission issued a further Statement in 2003 which included:

‘There are no overwhelming resource implications to the implementation of the Royal Commission’s recommendation. If Government believes that long-term care funding is an important issue - and presumably it does, otherwise the Royal Commission would not have been set up - it can find the necessary resources both now and in the future. More important, the limited changes to the care funding system in England, Wales and Northern Ireland have not addressed the deep-seated issue of inequity, hardship and the need for a principled approach across the United Kingdom. The system in these countries is unstable. If not dealt with in the near future, it will implode.’

Eight years on and we’re still debating it!!!

Both the full Report and the Statement are available on-line. Easiest to ’google’ for them.</description>
		<content:encoded><![CDATA[<p>What I want to know is &#8211; why did Gordon Brown as Chancellor, and Tony Blair as Prime Minister, ignore the findings and recommendations of the Royal Commission Report, ‘With Respect to Old Age’, produced in 1999? (The Sutherland Report)?</p>
<p>Following extensive consultation, research and costing, this comprehensive Report looked at various options for funding and finally recommended:</p>
<p>‘The costs of long-term care should be split between living costs, housing costs and personal care. Personal care should be available, after assessment, according to need and paid for from general taxation: the rest should be subject to co-payment according to means.’ </p>
<p>The recommendations were implemented in Scotland where care is, in effect, subsidised by tax payers in the south of England. </p>
<p>After the Government’s failure to act, the Royal Commission issued a further Statement in 2003 which included:</p>
<p>‘There are no overwhelming resource implications to the implementation of the Royal Commission’s recommendation. If Government believes that long-term care funding is an important issue &#8211; and presumably it does, otherwise the Royal Commission would not have been set up &#8211; it can find the necessary resources both now and in the future. More important, the limited changes to the care funding system in England, Wales and Northern Ireland have not addressed the deep-seated issue of inequity, hardship and the need for a principled approach across the United Kingdom. The system in these countries is unstable. If not dealt with in the near future, it will implode.’</p>
<p>Eight years on and we’re still debating it!!!</p>
<p>Both the full Report and the Statement are available on-line. Easiest to ’google’ for them.</p>
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		<title>By: Val Shepherd</title>
		<link>http://www.caringchoices.org.uk/index.php/getting-down-to-the-thorny-issues-where-should-new-cash-for-care-be-prioritised/comment-page-1#comment-219</link>
		<dc:creator>Val Shepherd</dc:creator>
		<pubDate>Wed, 26 Sep 2007 20:18:12 +0000</pubDate>
		<guid isPermaLink="false">http://www.caringchoices.org.uk/?p=66#comment-219</guid>
		<description>Perhaps some of the 

&quot;SECRET NI FUND&quot; which stands at £38.4bn &quot;  

.  [Printed in the East Anglian Daily Times n 23,June 07)    (copy available0

could be used towards funding.  The article ws writeen by a member of the Pensioners Association.   The writer was  &quot;indebtedThe National Pensioner&#039;s Convention (NPC)</description>
		<content:encoded><![CDATA[<p>Perhaps some of the </p>
<p>&#8220;SECRET NI FUND&#8221; which stands at £38.4bn &#8221;  </p>
<p>.  [Printed in the East Anglian Daily Times n 23,June 07)    (copy available0</p>
<p>could be used towards funding.  The article ws writeen by a member of the Pensioners Association.   The writer was  &#8220;indebtedThe National Pensioner&#8217;s Convention (NPC)</p>
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		<title>By: Rosemary</title>
		<link>http://www.caringchoices.org.uk/index.php/getting-down-to-the-thorny-issues-where-should-new-cash-for-care-be-prioritised/comment-page-1#comment-214</link>
		<dc:creator>Rosemary</dc:creator>
		<pubDate>Tue, 25 Sep 2007 15:01:24 +0000</pubDate>
		<guid isPermaLink="false">http://www.caringchoices.org.uk/?p=66#comment-214</guid>
		<description>There are quite a few online forums where caring experiences are shared and each and every one of them is as important as the next.It does not matter which forum a carer belongs to.What matters is that a place is provided where those seeking help can come to and receive both support and advice.It is purely a personal choice where a person registers.
All carer forums are filled with daily stories of frustrations and anger,of carers campaigning,of carers  trying to raise awareness more of the situation faced by many.
There can only be one target here, and that is the Government ( which ever party is in power ).</description>
		<content:encoded><![CDATA[<p>There are quite a few online forums where caring experiences are shared and each and every one of them is as important as the next.It does not matter which forum a carer belongs to.What matters is that a place is provided where those seeking help can come to and receive both support and advice.It is purely a personal choice where a person registers.<br />
All carer forums are filled with daily stories of frustrations and anger,of carers campaigning,of carers  trying to raise awareness more of the situation faced by many.<br />
There can only be one target here, and that is the Government ( which ever party is in power ).</p>
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		<title>By: Clive Arnold (UK Carers)</title>
		<link>http://www.caringchoices.org.uk/index.php/getting-down-to-the-thorny-issues-where-should-new-cash-for-care-be-prioritised/comment-page-1#comment-213</link>
		<dc:creator>Clive Arnold (UK Carers)</dc:creator>
		<pubDate>Tue, 25 Sep 2007 12:32:42 +0000</pubDate>
		<guid isPermaLink="false">http://www.caringchoices.org.uk/?p=66#comment-213</guid>
		<description>ALSO if you prefer to see an unsanitized view of caring where no restriction is put on people&#039;s views then try looking at www.ukcarers.org.uk. 

Unlike the charity site it actually IS run by Carers for Carers, we don&#039;t hide the frustrations and anger at how Carers are treated by heavy-handed moderation. 

If Caring is to be &#039;improved&#039; then Carers themselves need to be at the heart of EVERY consultation body/exercise, at present they are excluded or actively blocked from taking part. It&#039;s time &#039;professionals&#039; started listening to the people that provide the majority of &#039;care&#039; because WE have so much experience that is being overlooked in favour of people without any &#039;actual&#039; knowledge of caring</description>
		<content:encoded><![CDATA[<p>ALSO if you prefer to see an unsanitized view of caring where no restriction is put on people&#8217;s views then try looking at <a href="http://www.ukcarers.org.uk" rel="nofollow">http://www.ukcarers.org.uk</a>. </p>
<p>Unlike the charity site it actually IS run by Carers for Carers, we don&#8217;t hide the frustrations and anger at how Carers are treated by heavy-handed moderation. </p>
<p>If Caring is to be &#8216;improved&#8217; then Carers themselves need to be at the heart of EVERY consultation body/exercise, at present they are excluded or actively blocked from taking part. It&#8217;s time &#8216;professionals&#8217; started listening to the people that provide the majority of &#8216;care&#8217; because WE have so much experience that is being overlooked in favour of people without any &#8216;actual&#8217; knowledge of caring</p>
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